News From the Heart: June 2011

by Tammy 9. June 2011 09:19

FND is Awarded Family to Family Health Information Center Grant

We are happy to announce that we have been awarded the Family to Family Health Information Center grant for children and youth with special health care needs and their families. The award was made by the U.S. Department of Health and Human Services, Health Resources and Services Administration.

The grant to serve families across Florida begins June 1 of this year. FND will provide information and support to families on various topics regarding the needs of children and youth with special health care needs. More announcements about services, workshops, and events will be released soon.

Día del Niño

Family Network on Disabilities' Parents Educating Parents in the Community (PEP) Program hosted Día Del Niño on Saturday, May 14, at The RCMA in Immokalee. We would like to thank Southwest Florida Insurance, Little Caesar's Pizza, Winn-Dixie, and especially the staff at RCMA. This event would not be the same without their support, generosity, and compassion.

We would also like to thank the Mary E. Dooner Foundation for their support. The Foundation made a generous donation to help support this event and the PEP Program and we are very grateful.

Mothers Against Brain Injury 2011 PSA Contest Winner

If you voted in this contest focused on teen unsafe driving practices and their consequences, you are probably interested in which PSA won.

1st Place:          Phone Snatcher

2nd Place:         Disappearing

3rd Place:          Texting and Driving

4th Place:          Regretful Aftermath

The videos can still be viewed at www.firstcoastteens.com.

FND's TILES Program Wins National Award of Excellence

Family Network on Disabilities is happy to announce that the Transition, Independent Living, Employment, and Support (TILES) Program has been awarded the Annual Award for Excellence in Transition-focused Parent Training from PACER Center's TATRA (Technical Assistance on Transition and the Rehabilitation Act) Project. This annual award identifies and highlights promising transition tools for students with disabilities. 

Project Director, Tara Bremer, Training Coordinator, Amber Dame, and Youth Mentor, Randall Kleinheinz, were presented with the award at the 5th Annual Secondary Transition State Planning Institute for the newly-developed Road to Successful Transition Workshop. This is a six-module lesson plan to help with transition planning and self-advocacy.

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VISIONS Employment Opportunities

by tara 1. June 2011 12:35

VISIONS is currently seeking a full time Outreach Trainer to provide information and training to Native American/Native Hawaiian/Alaska Native parents of children with disabilities.  For more information please call (877) 205-7501 or email your resume to: employment@fndvisions.org.  Please include Outreach Trainer in the subject line.

 

We are also seeking a part time Youth Mentor to reach out and offer support and training Native American/Native Hawaiian/Alaska Native youth and young adults with disabilities.  For more information please call (877) 205-7501 or email your resume to: employment@fndvisions.org.  Please include Youth Mentor in the subject line.

 

MUST HAVE a strong, first hand, knowledge of Native American culture.

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Family Network on Disabilities' Transition, Independent Living, Employment, and Support (TILES) Program Wins National Award for Excellence

by Tammy 19. May 2011 12:40
May 18, 2011

FOR IMMEDIATE RELEASE

 

 

Family Network on Disabilities (FND) is happy to announce that their Transition, Independent Living, Employment, and Support (TILES) Program has been awarded the Annual Award for Excellence in Transition-focused Parent Training from PACER Center’s TATRA (Technical Assistance on Transition and the Rehabilitation Act) Project.  This annual award identifies and highlights promising transition tools for students with disabilities.

Project Director, Tara Bremer, Training Coordinator, Amber Dame, and Youth Mentor, Randall Kleinheinz, were presented with the award this morning at the 5th Annual Secondary Transition State Planning Institute for the newly-developed Road to Successful Transition Workshop.  This is a six-module lesson plan to help with transition planning and self-advocacy.

The Road to Successful Transition Workshop is a key component in FND’s new statewide Youth Advocacy and Action Project of FND.  This project is aimed at developing advocacy and leadership skills among youth with disabilities to help them improve their lives and their communities.  The project will provide training in advocacy to youth with disabilities, who then put those skills into practice by advocating for themselves and for improvement in their communities.

In addition to in-person training sessions, The Road to Successful Transition Workshop will be made available through webinars, archived presentations on our website, through FND University (an e-learning platform which will be launched later this summer), and distributed on CD’s.

Family Network on Disabilities is a national network of individuals of all ages who may be at-risk, have disabilities, or have special needs and their families, professionals, and concerned citizens.  The mission of Family Network on Disabilities is to ensure through collaboration that individuals have full access to family-driven support, education, information, resources, and advocacy and to serve families of children with disabilities.For more information about Family Network on Disabilities, please visit www.fndusa.org or contact (800) 825-5736.

 

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Family Network on Disabilities Announces Award of Family to Family Health Information Center Grant

by Tammy 19. May 2011 12:36

May 17, 2011

FOR IMMEDIATE RELEASE

Dunedin, Florida – Family Network on Disabilities (FND) is happy to announce that it has been awarded the Family to Family Health Information Center grant for children and youth with special health care needs (CSHCN) and their families.  The award was made by the U.S. Department of Health and Human Services, Health Resources and Services Administration.

Jennifer Morgan Byrd, FND’s President of the Board of Directors, said:  “We are honored by this grant award.  We look forward to working with families of children and youth with special health care needs across the state.  Now more than ever, our families need the support and information that is the focus of this grant.”

The grant to serve families across Florida begins June 1 of this year.  FND will provide information and support to families on various topics regarding the needs of children and youth with special health care needs.  More announcements about services, workshops, and events will be released soon.

Richard La Belle, FND’s Executive Director, said:  “We are humbled by this award.  Peer to peer support and providing information to families in need is what FND is all about.  I will never forget the powerful impact in my family’s life when my wife and I found someone who understood what we were going through and who was offering us a hand to hold through the maze.  That is what we will continue to pay forward in helping other families across Florida through this grant.”

More information about the Family To Family Health Information Center grant can be obtained from the FND Central office, 2196 Main Street, Suite K, Dunedin, FL, 34698, (727) 523-1130, or from Richard La Belle, who can be reached directly at the FND number and at richlabelle@fndusa.org.

For more information, please contact:

Richard La Belle, Executive Director

Family Network on Disabilities

2196 Main Street, Suite K

Dunedin, FL 34698

Tel: 727 523 1130

Fax: 727 523 8687richlabelle@fndusa.org

www.fndusa.org

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News from the Heart: Vol. 2, Issue 13 (May 1, 2011)

by Tammy 2. May 2011 06:37

Mothers Against Brain Injury, Inc.

In the last issue of News from the Heart we introduced to you an organization called Mothers Against Brain Injury, Inc. Mothers Against Brain Injury (MABII) is the recipient of The Allstate Foundation's Teen Safe Driver Grant for the 4th year in a row. MABII's Executive Director, Tracy Porter, has reached out to high schools throughout Duval, St. Johns, Nassau and Clay Counties to create powerful PSA's focused on the hazards of unsafe teen driving practices (like texting while driving).

A panel of teenagers has narrowed the contest down to 4 finalists and those PSA's can be voted on by the public at www.firstcoastteens.com from April 25 until May 5. The winner will be decided by the most number of votes and the prizes will be awarded live on First Coast News Good Morning Jacksonville on Saturday, May 7.

Please visit the site, watch the videos, and cast your vote for the PSA that moves you the most. (Warning - you may need a box of tissues.)

William J. Rish Recreational Park

William J. (Billy Joe) Rish Recreational Park is located on the St. Joseph Peninsula near Port St. Joe and Cape San Blas in northwest Florida. It is 100 beautiful acres and is accessible for persons with disabilities. Rish Park is open year round. Special ramps provide beach access on the Gulf of Mexico and newly renovated boardwalks connect all of the cabins to the beach, event hall, and pool. Even the swimming pool is wheelchair accessible.

The entry fee is $5 per day per person. Reservations are not required for day visits, but it is best to call ahead of time to make sure the park is not filled to capacity.

Eight cabins are available for overnight stays for individuals, families, and large groups.Only Florida residents with disabilities may rent cottages or use the park facilities.  Family members, guardians, or caregivers are welcome as well. Advance registration is required for overnight stays.

Visit the website at www.myflorida.com/rish-park/index.htm.

 

Children's Week

 

Even though the weather was stormy, people still flocked to the Capitol April 3-9 to celebrate the 16th Annual Children's Week and promote children and family issues to the Florida legislature.

FND staff participated with other people from across the state in the Hanging of the Hands in the Capitol Rotunda on April 3 and shared information with families and professionals who came to Tallahassee during the week.

The winners of the Jan La Belle Scholarship, Kinsey Leonard and Jessica Moody, were recognized at a reception held at Chez Pierre on Tuesday, April 5. Representative Patrick Rooney, Representative Rick Kriseman, and Attorney General Pam Bondi stopped by to meet members of the disability community and congratulate the scholarship winners.

Pacific Rim International Conference on Disabilities

Family Network on Disabilities presented at the Pacific Rim International Conference on Disabilities April 18-19 for the third time in as many years. Three of FND's programs participated by hosting workshops, breakouts and poster sessions at this conference that is well known for its diversity. 

News from the Heart: Vol. 2, Issue 12 (April 1, 2011)

by Tammy 18. April 2011 12:24

Children's Week

We had a good turn-out at our Children's Week Event held in Dunedin last weekend. Thank you to everyone who helped make this event a success:

Angelo's Pizza, Winn-Dixie, Target, Boy Scouts of America, Gymboree, The Dunedin Public Library, Art from the Heart Café, Clearwater Marine Aquarium, Dunedin Parks & Recreation, Dunedin Blue Jays, Clearwater Threshers.

Staff will be participating in Children's Week activities at the State Capitol April 3-9.

 

The Youth Advocacy and Action Project of FND

With the help of generous funding from the Starbucks Foundation, Family Network on Disabilities (FND) is very happy to announce the launch of a new statewide project called The Youth Advocacy and Action Project of FND.

This project is aimed at developing advocacy and leadership skills among youth with disabilities to help them improve their lives and their communities. The project will provide training in advocacy to youth with disabilities, who then put those skills into practice by advocating for themselves and for improvement in their communities.

In addition to the monetary help provided by the Starbucks Foundation, FND will be partnering with Starbucks employees to assist the project's "graduates" in choosing and participating in an activity or project that will benefit and improve their community.

By motivating youth to action, we hope to inspire a generation to take responsibility for their communities. The ultimate goal of this project is to leave in place a well trained, confident group of youths with disabilities who will be able to advocate for themselves - to improve their own lives - as well as their communities.

Family Network on Disabilities (FND) was founded in 1985 by a group of parents of persons with disabilities who came together for mutual support and information-sharing. FND is a grassroots organization for persons with disabilities and their families that is family-centered and family-driven.

The mission of Family Network on Disabilities is to ensure through collaboration that individuals have full access to family-driven support, education, information, resources, and advocacy. FND serves all persons with all disabilities and believes that everyone has intrinsic value and the inherent right to: respect, independence, knowledge, freedom of choice, inclusion, quality of life, success, and equality.

Wrightslaw Conference

Registration for the Wrightslaw Conference is full, but the training will be available FREE via live-streaming webcast on our website as well as on your iPhone or Android phone, so stay tuned!

We are proud to be hosting this FREE Special Education Law & Advocacy Training Program with Peter Wright, Esq. on Saturday, June 4, 2011, from 9:00am until 4:30pm at the Campus Activity Center at USF St. Petersburg in collaboration with the USF St. Petersburg College of Education.

The Wrightslaw special education law and advocacy training program will focus on four areas: 
  • Special education law, rights and responsibilities
  • Tests and measurements to measure progress and regression
  • SMART IEP's
  • Introduction to tactics and strategies for effective advocacy

Wrightslaw programs are designed to meet the needs of parents, educators, health care providers, advocates and attorneys who represent children with disabilities regarding special education.

All in-person participants will receive FREE Wrightslaw materials pertaining to the training! Additional Wrightslaw materials will be available at a discounted rate.

Box lunches will be available on site for $5.00 per person. Cash only!

 

Jan La Belle Scholarship Program

 

Family Network on Disabilities is proud to announce the winners of the Jan La Belle Scholarship Program.

The Jan La Belle Scholarship Program was created to honor Jan La Belle, Executive Director of Family Network on Disabilities from 1995 to 2005, for her passion and dedication to individuals with disabilities and their families. FND wishes to recognize her dedication by helping ensure that each person, regardless of ability or disability, is able to pursue their own hopes and dreams and to do so as independently as possible. This program is created to allow any qualified individual with a disability to pursue their dreams and give back to the community.

The 2010-2011 winners are the first recipients of the Scholarship Program. Awards will be made annually, up to $15,000 and will be targeted at individuals between the ages of 16 and 24 who have a disability and who are pursuing higher education as a first-time student at any institution of higher learning, whether academic or vocational.

This year's award winners are Kinsey Leonard and Jessica Moody.

Kinsey Leonard will be attending Daytona State College in the Fall of 2011. She has been accepted into the Photography Technology Program and hopes to become an underwater photographer. In January of 2004, Kinsey was hit by a pick-up truck while crossing the street to board her school bus and suffered a life threatening traumatic brain injury. She has overcome tremendous obstacles and FND is thrilled to be able to help her realize her dream.

Jessica Moody will be attending University of Central Florida in the Summer of 2011.  As a student with a disability, she has also overcome tremendous obstacles. Jessica wants to be a Special Education teacher and FND is honored to be able to help her achieve that goal.

 

Mothers Against Brain Injury, Inc.

 

Mothers Against Brain Injury is a 501(c)3 Florida non-profit organization created in 2005 out of compassion and empathy for families experiencing the sudden and unexpected news that a loved one has suffered traumatic brain injury. Visit www.mabii.org to learn more about this organization and for additional information on how they help families.

FND Announces Youth Leadership Program

by Tammy 25. March 2011 11:49

FND Announces Youth Leadership Program 

With the help of generous funding from the Starbucks Foundation, Family Network on Disabilities (FND) is very happy to announce the launch of a new statewide project called The Youth Advocacy and Action Project of FND.

This project is aimed at developing advocacy and leadership skills among youth with disabilities to help them improve their lives and their communities.  The project will provide training in advocacy to youth with disabilities, who then put those skills into practice by advocating for themselves and for improvement in their communities.

In addition to the monetary help provided by the Starbucks Foundation, FND will be partnering with Starbucks employees to assist the project’s “graduates” in choosing and participating in an activity or project that will benefit and improve their community.

By motivating youth to action, we hope to inspire a generation to take responsibility for their communities.  The ultimate goal of this project is to leave in place a well trained, confident group of youths with disabilities who will be able to advocate for themselves – to improve their own lives – as well as their communities.

Family Network on Disabilities (FND) was founded in 1985 by a group of parents of persons with disabilities who came together for mutual support and information-sharing.  FND is a grassroots organization for persons with disabilities and their families that is family-centered and family-driven.

The mission of Family Network on Disabilities is to ensure through collaboration that individuals have full access to family-driven support, education, information, resources, and advocacy.  FND serves all persons with all disabilities and believes that everyone has intrinsic value and the inherent right to:  respect, independence, knowledge, freedom of choice, inclusion, quality of life, success, and equality. 

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News from the Heart: Vol. 2, Issue 11 (March 18, 2011)

by Tammy 21. March 2011 05:52

This will be the last weekly edition of News from the Heart. The results of our survey indicated that you would prefer to receive the newsletter monthly

News from the Heart will be sent to you the first each month, beginning April 1. We hope that this format will give you the information that you need in a timely, efficient manner.

Please don't wait for the next survey to let us know what you think. This publication is for your use and we want to provide you with information that you when you need it. Comments and suggestions are always welcome.

Children's Week

We are very excited about the Children's Week event that is fast approaching on Saturday, March 26 from 11:00am - 2:00pm at The Dunedin Community Center (1920 Pinehurst Road). This is a FREE event celebrating the upcoming Children's Week event in Tallahassee next month. The Dunedin Public Library will be there to conduct storytime (which will also be interpreted in sign language), Art from the Heart Café will have pottery painting, and Phinley of the Clearwater Threshers will make a special appearance at 11:00 am. The Dunedin Blue Jays mascot, D-Jay, heard that Phinley is going to be there and is planning to crash the event too! There will be a free bounce house, free food, and much more!

Children can decorate paper cut-outs of their hands for FND staff to take to Tallahassee to hang in the Capitol Rotunda on Sunday, April 3. This artwork will remain hanging in the Rotunda all of Children's Week as a visual reminder to legislators to remember our children. 

Agencies all across Florida will be hosting local events leading up to Children's Week.  Visit www.children'sweek.org to find an event in your area.

Free Tax Preparation

The Free File program allows 70% of all taxpayers to file their returns for free online. This public-private partnership between the IRS and a number of tax software companies is available to millions of people. Some companies offer their software in both English and Spanish. Visit www.freefile.irs.gov to find out if you are eligible and to learn more about the program.

United Way also has a free tax preparation program. Call 2-1-1 for the free filing site nearest you.

Developmental Disabilities Awareness Day

Wednesday, March 23, is Developmental Disabilities Awareness Day.  This year's event in Tallahassee is sponsored by the Florida Development Disabilities Council and the Arc of Florida. This is a great opportunity to visit exhibit tables hosted by various organizations and state agencies that can provide you with information about services and programs available for persons with developmental disabilities and their families. 

This is also an excellent opportunity for you to meet your state senators and representatives and help them understand the challenges you and your family members face.

Visit http://www.fddc.org/sites/default/files/file/legislative_action/DD%20Awareness%20Day%20General%20%20Agenda%202011.pdf for the day's schedule.

Wrightslaw Conference

Registration is still open! Register online at www.fndfl.org/wrights-law/.

FND is proud to be hosting a FREE Special Education Law & Advocacy Training Program with Peter Wright, Esq. being held on Saturday, June 4, 2011, from 9:00am until 4:30pm at the Campus Activity Center at USF St. Petersburg in collaboration with the USF St. Petersburg College of Education.

The Wrightslaw special education law and advocacy training program will focus on four areas:
  • Special education law, rights and responsibilities
  • Tests and measurements to measure progress and regression
  • SMART IEP's
  • Introduction to tactics and strategies for effective advocacy

Wrightslaw programs are designed to meet the needs of parents, educators, health care providers, advocates and attorneys who represent children with disabilities regarding special education.

Registration is required and will be open to 200 participants. All 200 participants will receive FREE Wrightslaw materials pertaining to the training! Additional Wrightslaw materials will be available at a discounted rate.

Box lunches will be available on site for $5.00 per person. Cash only! 

We will be offering 0.6 CEU's for attending this training! A fee of $9.00 will be payable the day of the conference to receive the certificate. CLE's are pending.

 

 

News from the Heart: Vol. 2, Issue 10 (March 11, 2011)

by Tammy 14. March 2011 05:54

Children's Week

Join us on Saturday, March 26 from 11:00am - 2:00pm at the Dunedin Community Center (1920 Pinehurst Rd) for a FREE event celebrating the upcoming Children's Week event in Tallahassee next month. The Dunedin Public Library will conduct storytime (which will also be interpreted in sign language), Art from the Heart Café will be there for pottery painting, and Phinley of the Clearwater Threshers will make a special appearance at 11:00am. There will be a free bounce house, free food, and much more!

Children can decorate paper cut-outs of their hands for FND staff to take to Tallahassee to hang in the Capitol Rotunda on Sunday, April 3. This artwork will remain hanging in the Rotunda all of Children's Week as a visual reminder to legislators to remember our children.

Agencies all across Florida will be hosting local events leading up to Children's Week.  Visit www.childrensweek.org to find an event in your area.

March Madness

ESPN has a new site geared toward women (www.espnw.com). Columns include titles such as "This Week in Women's Sports" and the stories are more appealing to females.  One of this week's motivational stories is about a single mother of two who has gained strength from training and triathlons despite suffering from lupus.

You can also put an altruistic spin on college hoops March Madness with a new tradition. Instead of a regular pool, go for a benevolent bracket, where the winner directs the pot to their favorite charity. FND would be honored and grateful to receive your office pool proceeds! 

Wrightslaw Conference

Registration is open! Register online at www.fndfl.org/wrights-law/ FND is proud to be hosting a FREE Special Education Law & Advocacy Training Program with Peter Wright, Esq. will be held on Saturday, June 4, 2011, from 9:00am until 4:30pm at the Campus Activity Center at USF St. Petersburg (199 6th Ave S) in collaboration with the USF St. Petersburg College of Education. The Wrightslaw special education law and advocacy training program will focus on four areas:
  • Special education law, rights and responsibilities
  • Tests and measurements to measure progress and regression
  • SMART IEP's
  • Introduction to tactics and strategies for effective advocacy

Wrightslaw programs are designed to meet the needs of parents, educators, health care providers, advocates and attorneys who represent children with disabilities regarding special education.

Registration is required and will be open to 200 participants. All 200 participants will receive FREE Wrightslaw materials pertaining to the training! Additional Wrightslaw materials will be available at a discounted rate.

Box lunches will be available on site for $5.00 per person. Cash only!

We will be offering 0.6 CEU's for attending this training! A fee of $9.00 will be payable the day of the conference to receive the certificate. CLE's are pending.

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News from the Heart: Vol 2, Issue 9 (March 4, 2011)

by Tammy 4. March 2011 08:32

Children's Week

Children's Week will take place in Tallahassee April 3 - April 9.  Go to http://www.childrensweek.org/index.php?page=events&menu=2009schedule to see a complete Schedule of Events.

Family Network on Disabilities will be hosting a FREE local event at The Dunedin Community Center on Saturday, March 26 from 11:00am - 2:00pm. Storytime will be conducted by The Dunedin Public Library, Art from the Heart Café will be there for pottery painting, and Phinley of the Clearwater Threshers will make a special appearance at 11:00 am. There will be a free bounce house, free food, and much more! Please join us! 

Agencies all across Florida will be hosting local events leading up to Children's Week.  Go to http://www.childrensweek.org/index.php?page=local&menu=eventsbycounty to find an event in your area.

 

Children can decorate paper cut-outs of their hands for FND staff to take to Tallahassee to hang in the Capitol Rotunda on Sunday, April 3. This artwork will remain hanging in the Rotunda all of Children's Week as a visual reminder to legislators to remember our children.

 

Read a Book, Give a Book Campaign 

In addition to participating in local Children's Week events (and maybe even traveling to Tallahassee), you can help get 5,000 free books into the hands of children by participating in the Pearson Foundation's We Give Books initiative. Visit www.wegivebooks.org/campaigns/united-way-of-florida with a child and read some of your favorite children's books online for free. With each digital book you read to a child, the Pearson Foundation will give a brand new book to a local Children's Week partner to give to children in their community.

FREE Wrightslaw Conference

Save the Date!  Registration opens Friday, March 4 at 9:00am! Call 800-825-5736 or visit http://fndfl.org/Wrights-Law/ to register!

FND is proud to be hosting a FREE Special Education Law & Advocacy Training Program with Peter Wright, Esq. on Saturday, June 4, 2011, from 9:00am until 4:30pm at the Campus Activity Center at USF St. Petersburg, in collaboration with the USF St. Petersburg College of Education. The Wrightslaw special education law and advocacy training program will focus on four areas:
  • Special education law, rights and responsibilities
  • Tests and measurements to measure progress and regression
  • SMART IEP's
  • Introduction to tactics and strategies for effective advocacy
Wrightslaw programs are designed to meet the needs of parents, educators, health care providers, advocates and attorneys who represent children with disabilities regarding special education. Registration is required and will be open to 200 participants. All 200 participants will receive FREE Wrightslaw materials pertaining to the training! Additional Wrightslaw materials will be available at a discounted rate. Box lunches will be available on site for $5.00 per person. Cash only! 

We will be offering 0.6 CEU's for attending this training! A fee of $9.00 will be payable the day of the conference to receive the certificate. CLE's are pending.

 

Is Every Week Too Often?

If you haven't already, please click on the link below to let us know if you would like to continue receiving News from the Heart each week or if you would prefer to receive it on a monthly basis. www.surveymonkey.com/s/2FJTFHL

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